Rare Disease Day 2018

By | 2018-03-07T03:43:59+00:00 2 Mar 2018|

HAE Australasia ran a very successful media campaign through Palin Communications to help raise awareness of Hereditary Angioedema (HAE), and rare diseases in general on Rare Disease Day. Here are just a few of the interviews that took place in major and local papers, radio, television and online. Thank you to all the brave patient [...]

The Brady Club

By | 2018-01-28T02:27:54+00:00 28 Jan 2018|

The Brady Club is an online safe space customized for children diagnosed with HAE and their siblings. We hope this page will help youngest HAE patients to better understand, manage, and cope with their disease while offering fun ways for them to feel inspired, empowered, and connected to other kids who share their questions, dreams [...]

The MedicAlert® Foundation Benevolent Program for HAE Patients

By | 2018-01-13T06:21:36+00:00 13 Jan 2018|

                                                                                       As Australia's most trusted and recognised provider of the lifesaving 24/7 Emergency Response Service and [...]

HAEi Youngsters Camp

By | 2017-11-22T05:20:36+00:00 22 Nov 2017|

The first HAEi Youngsters Camp was held in Frankfurt in early August. Most of the youngsters hadn't met each other before, and they didn't need much encouragement in connecting and making lifelong friendships with one another. Here is some feedback from the Australasians who took part: The trip was one of the most amazing things that [...]

Sandra Eriksen’s Story of Walking the Camino and the HAEI Global Conference

By | 2017-04-07T08:25:28+00:00 4 Jul 2016|

Buen camino! Good walk – or enjoy the journey - that´s how everyone greets each other on Spain´s historic Camino de Santiago. And we had the privilege of joining 80 others from the global HAE community on a three-day walk that took us through beautiful countryside to the magnificent cathedral at Santiago de Compostela, where [...]

Living With HAE Workshop presented by Dr Chris Basten

By | 2017-10-05T09:17:43+00:00 9 May 2016|

Are you or anyone in your family finding it hard to cope with HAE? Do you sometimes struggle to remain positive living with HAE? Would you like the tools to help you cope with HAE? Come and meet with others that share your story. HAE Australasia is teaming up with Dr Chris Basten Clinical Psychologist [...]

Join the Global HAE Walk

By | 2017-04-04T08:04:08+00:00 28 Apr 2016|

Quite a number of people have told HAEi that they would really have liked to participate in the Camino Walk in northern Spain but are unable for one reason or the other. Therefore they have arranged a global HAE walk. It works in this very simple way: You can participate wherever you are. All you need to do is [...]

We Need Your Help

By | 2017-04-04T08:04:08+00:00 8 Apr 2016|

Hands up who wants better access to more treatments!!! The HAE Patient Registry can make that happen. Our pre-budget submission is asking the government to slice us a little of the budget pie so we can make it a reality by helping to fund the project. We are asking patients to simply print off the [...]