2016 HAE Global Conference Madrid

By |2017-04-04T08:04:09+00:002 Dec 2015|

The 2016 HAE Global Conference will take place 19 – 22 May 2016 in Madrid, Spain. The theme for the international gathering is “Creative Advocacy for Expanding Access to Therapy.” Attendees at the 2016 HAE Global Conference can expect a wide variety of important information and learning opportunities that include HAE fundamentals, the most recent clinical [...]

2015 Patient Meeting Quality of Life Survey

By |2017-04-04T08:04:09+00:0021 Oct 2015|

Patients attending the 2015 HAE Australasia Patient meeting held in Sydney were invited to participate in a quality of life survey conducted by Professor Connie Katelaris. Her findings indicate that although the situation for those living with HAE  has improved, the 2015 HAE Australasia Patient Survey reveals the continuing burden of living with this condition. Twenty two [...]

Western Australia Meet UP 28th November 2015

By |2017-10-05T09:20:26+00:005 Oct 2015|

Western Australia HAE Patients  and Carers, are invited to attend a Meet Up to be held in East Fremantle. This is an opportunity to meet with others affected by this condition. It is a chance to share stories and to also hear and learn more about HAE from our guest speakers. Our speakers and topics include: A/Prof Richard Loh - Who will [...]

Icatibant (Firazyr) funding in New Zealand

By |2017-04-04T08:04:09+00:005 Oct 2015|

HAE Australasia are delighted and appreciative of the ground breaking decision from Pharmac in New Zealand to fund Icatibant (Firazyr) for eligible patients living with Hereditary Angioedema. The decision will allow patients in need of an effective treatment to greatly improve their quality of life and bring their treatment options in line with those available in Australia. [...]

The HAEi Global Conference in Madrid 2016

By |2017-04-04T08:04:09+00:0024 May 2015|

Following the very successful HAE conferences in Copenhagen, Denmark in 2012 and Washington D.C., USA in 2014, HAEi has announced that the third HAE Global Conference will be held in Madrid, Spain in 2016. Attendees can expect a wide variety of important information and learning opportunities that include HAE fundamentals, the most recent clinical advances and consensus [...]

2015 Patient Meeting held at Olympic Park Sydney

By |2017-04-04T08:04:09+00:0022 May 2015|

The 4th Annual HAE Australasia Patient Meeting was held at the Novotel Sydney Olympic Park. The 64 attendees were there to share stories, and to learn more about living with HAE. Professor Connie Katelaris outlined the facts of HAE and treatments available now and possible future therapies. She spoke of the importance of patient participation [...]

Run for a Reason…Run for HAE May24th 2015

By |2017-04-04T08:04:09+00:009 May 2015|

This team event will be held in Perth, WA on Sunday May 24th. Amanda has organised a team to run in the HBF Run for a Reason. If you would like to join the team, please contact Amanda at amanda@haeaustralasia.org.au To support the team click here to (link is external)Donate

Melbourne Patient Meet Up 2014

By |2017-04-05T12:23:57+00:003 Dec 2014|

On Saturday November 22nd HAE patients and families gathered in Melbourne. Twenty one members of HAE Australasia enjoyed a warm Melbourne day and a most enjoyable lunch. It was great to get to know the new faces and to share their stories. Fiona, Lou and Anne as Board members provided news of HAE treatments but our [...]

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