Rare Disease Day 2018

HAE Australasia ran a very successful media campaign through Palin Communications to help raise awareness of Hereditary Angioedema (HAE), and rare diseases in general on Rare Disease Day.

Here are just a few of the interviews that took place in major and local papers, radio, television and online.

Thank you to all the brave patient and carers who volunteered to be interviewed, you helped create further awareness of our disease.


Border Mail – Saturday, March 3rd

Maureen shared her incredible story.  Click here to read ‘Blinded and breathless living with a disease no one has heard of’ 


Brisbane Times – Wednesday, February 28th

This article was picked up right around Australia via print, online and social media. Click here to read ‘Faye could have suffocated at any time now her son has the rare disease’


ABC Radio Central Coast – Wednesday, February 28th

Scott Levi interviewed Steve Barry and Fiona Wardman.


NBN News Central Coast – Wednesday, February 28th

Steve Barry speaks to NBN Central Coast.


ABC Radio Goulburn Murry – Wednesday, February 28th

Sandra Moon interviewed Fiona Wardman


The Western Leader and StuffNZ – Thursday, February 21st

Susan Ball shared her story of living with HAE.  Click here to read and view video of Susan’s story ‘Auckland woman goes up to a week without eating because of rare disease’


The Sunday Telegraph – Sunday, February 18th

This article was picked up right around Australia via print, online and social media.  Click here to read ‘Hundreds of Australians could have undiagnosed illness could kill’ 

More links to more stories soon.

By | 2018-03-07T03:43:59+00:00 2 Mar 2018|