Hands up who wants better access to more treatments!!!
The HAE Patient Registry can make that happen.
Our pre-budget submission is asking the government to slice us a little of the budget pie so we can make it a reality by helping to fund the project.
Time is ticking, Budget lockdown is from Monday April 18th.
The letter and pre-budget snapshot introduces our organisation, gives them information on our rare disease and explains what the money will be used for.
The more MPs that know about HAE the better.
Please share with us any feedback you receive.