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Welcome to HAE Australasia

HAE Australasia is a not for profit patient advocacy organisation, dedicated to providing support to Australian and New Zealand HAE patients and their families, as well as raising awareness of hereditary angioedema resulting from C1-inhibitor deficiency. HAE Australasia has been founded by HAE patients and HAE patient caregivers.

At HAE Australasia, HAE stands for more than Hereditary Angioedema;

  • Hope for the future
  • Advocacy for better treatment options
  • Education for patients and care-givers

We hope that this website helps to answer some of the questions you may have about Hereditary Angioedema. Whether you are a sufferer yourself, are newly diagnosed, not yet diagnosed, or know someone who is a sufferer, you are not alone. If you do not find answers to your questions, or you would like a confidential chat, please get in touch with us. We are here to support you.

Don’t forget to check back regularly for updates on planned patient meetings, current studies taking place and other news.

Please don’t hesitate to contact us for any further information.

Sign up and become a member of HAE Australasia

Click here, and become a member

Help HAE Australasia improve the quality of life of those living with HAE

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Latest News

Upcoming Events

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See event calendar

Patient Story

Rosie’s Global Conference Story.

The 2014 Global conference in Washington DC was a wonderful experience and I’m incredibly grateful to HAEi for organizing it.

Read more of this story ..

2017 hae day :-)

Look out for the next hae day :-) on 16 May 2017

Learn more..

Use our interactive map and find resources near you

View world map at HAEi.org